READYorNotTM
Congenital Heart Disease Study

Study Overview

The READYorNotTM Congenital Heart Disease Trial is a research study designed to help teens move successfully from pediatric to adult cardiology care. This study is being done at 4 children's hospitals across Canada: BC Children's Hospital (Vancouver), Stollery Children's Hospital (Edmonton), SickKids (Toronto), and CHU Ste. Justine (Montreal).  This research study will test if using an app to learn about their heart condition will help teenagers prepare for entering the adult healthcare system.  

If you wish to participate in this study, you will randomly be assigned to one of two groups. You have a 1 in 2 chance of being assigned to each group.

Group 1: Participants will be given access to an app to teach them about CHD. A nurse or study coordinator will introduce them to the app. This will take about 30 minutes. Participants will then have access to the app for 18 months.

Or

Group 2: Participants will receive one-on-one teaching from a cardiology nurse about their heart condition. This will take about 60 minutes. This approach has previously shown to be effective. Group 2 participants will not have access to the app.

I am participating in the study… How Do I Get Started?

Welcome to the study and thank you for working with us!

After you have signed up, a member of the study team will tell you if you are in the App group or the nurse-led teaching group. If you're in the App group, you will get an introduction and demo of how the App works with a member of the study team. They will help you download the App on your device to get you started and they will give you a handy reference handout with some quick tips about using the App.